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Local/National Resources
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| When you focus only on your child's physical health, you're missing half the picture. |
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NORTH DAKOTA SUPPORT
Apraxia Support Group
If you are interested in joining a group, please contact Apraxia Speaks (ND residents) or MN Children with Apraxia (MN residents).
Asperger Support Group
An inclusive center providing free and comprehensive direct services to individuals with AS, PDD-NOS, HFA and their families.
AuSome Kids Day Program
A structured curriculum developed for children with Autism Spectrum Disorders (ASD), developmental delays, and other behavioral issues.
Consumer and Family Network
A state-wide organization dedicated to advocating for consumers to be included in decisions made about mental health services; to increasing the number of consumers and family members on mental health planning and policy boards; to creating visibility and understanding on mental health issues and acting as a clearinghouse on public policy issues; to educating legislators and elected officials on the impact their laws and actions have on persons with mental or emotional illness. For more information please contact Viki Scheldrup at 701-572-1852.
Designer Genes
Provides support, information, education, and advocacy to families and persons with Down syndrome, as well as those supporting them, their friends, and professionals.
Epilepsy Foundation of MN
For information on support groups, activities or events in the Fargo/Moorhead area, please contact Stephanie Kolari at 651-287-2312.
Family Voices of ND
Provides families, with children and youth with special health care needs and/or disabilities, tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.
Family Voices of ND Parent to Parent Program
A statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Parents helping parents...it's a simple concept that works.
Federation of Families for Children's Mental Health
Please contact Deborah Jendro at 235-9923 in Fargo or Becky at 258-1628 or Carlotta at 222-3310 in Bismarck for parent to parent support group information.
ND Autism Connection Meetings
Meetings to help families connect the pieces relating to autism.
ND Dept. of Public Instruction Special Education
Resources relative to assistive and accessible technologies.
ND FamNet
Supports collaboration between family support organizations to improve health outcomes for families of children, youth and adults with special health care needs and/or disabilities.
Talk About Curing Autism-TACA
Monthly meetings feature educational speakers on important topics and allow family members to connect with one another and stay on top of the latest information in the autism world. For information on meetings in ND please see, TACA meetings.
NORTH DAKOTA RESOURCES
American Lung Association
Fun and educational asthma camps for children with moderate to severe asthma. For more information on the camps, please call 651-227-8014.
Anne Carlsen Center for Children week at Elks Camp Grassick
A fun and unique experience for teens with disabilities. Partnering with Elks Camp Grassick, this week of summer camp opportunities is unparalleled. Contact Theresa Hanson at 800-568-5175 ext. 169 for more information.
Division of Medical Genetics
A guide to understanding genetic conditions.
Donated Dental Services in ND
A partnership between the ND Department of Health's Oral Health Program, the ND Dental Association, and the National Foundation of Dentistry for the Handicapped. Donated Dental Services is one of the nation's largest dental health volunteer programs. Individuals who need care can contact the Donated Dental Services Program coordinator at 866-572-9390. For more information about the Donated Dental Services Program, contact Kimberlie Yineman, ND Department of Health, at 701-328-4930 or Joe Cichy, ND Dental Association, at 701-223-8870.
Dakota Medical Foundation Lend A Hand Program
An initiative to support and improve efforts to raise funds for individuals and families experiencing a medical crisis who live in Cass County, ND or Clay County, MN. For more information contact Jeana Peinovich, Program Director, at 701-356-2661.
Dynamic Needs Center, LLC
Offers a complementary alternative therapy that is new to the region. Mild Hyperbaric Oxygen Therapy has been found to benefit a variety of medical conditions. For more information, please call 701-252-1462.
Experience HealthND Medicaid Health Management Program
Experience HealthND utilizes community based Registered Nurse Care Managers (RNCMs), a 24/7 Nurse Line at 866-435-4306, a program website, and information resources to assist select Medicaid recipients with asthma, diabetes, heart failure and COPD in managing their health conditions and accompanying co-morbid conditions. The program is free, confidential, and voluntary. Seven registered nurses located throughout the state meet with recipients face to face and by phone to provide care coordination, education, referral and monitoring to increase self-management and adherence to provider treatment plans. Experience HealthND is sponsored by the ND Department of Human Services, Medical Services Division and U.S. Care Management. For more information on this program, please call 866-435-4306.
Family Voices of ND University
Online courses to becoming a mentor support parent and learning to be a health advocate.
KIDS Program of ND
An early intervention service providing home-based, family focused services. They help identify learning opportunities and provide support, instruction, information, and resources so parents and caregivers can help the child learn and develop to their full potential. The Fargo KIDS program also has the Region V Right Track program which provides developmental screenings to children under 3 in the southeast region of ND.
Medicaid Buy In Program or Children with Disabilities Program
Press Release and application
ND Association for the Disabled, Inc. (NDAD)
A non-profit founded by concerned citizens for the purpose of assisting people with disabilities within the state, many of who are not eligible for services from other agencies. NDAD provides information, referral and advocacy, and financial assistance for durable medical equipment, medications, personal care attendant, home accessibility, and out of town medical travel. For more information, contact Jeri at 800-532-6323.
ND Caring Program
Provides health coverage to uninsured children. For more information on this program, please call 800-342-4718.
NDSU Mentorship Program for Prospective Students with Disabilities
A summer mentorship program to encourage and prepare students to pursue a university degree in science, technology, engineering, and mathematics (STEM) majors at NDSU. Prospective students will be individually mentored by NDSU staff and faculty members. Contact Sivapalan Gajan, Ph.D., at 701-231-5648 for more information.
Parent to Parent Program Referral Form
For more information, please call 888-522-9654.
Parent Resource Centers
Offers classes on parenting and parenting issues.
Fargo - Contact Angela Berge at 701-241-5700.
Minot - Contact Holly Arnold at 701-857-6450.
Dickinson - Contact West Dakota Parent and Family Resource Center at 701-456-0007.
Williston - Contact Deb Roel at 701-774-6335.
Grand Forks - Contact Judith Konerza at 701-787-4216.
Jamestown/Valley City - Contact Amy Tichy at 701-845-6652 or 701-845-8528.
Bismarck/Mandan - Contact Kathleen Schmaltz at 701-667-3342.
Prescription Assistance Program
Provides application assistance for low-income persons eligible for free or reduced-cost prescription drugs from pharmaceutical companies.
Prescription Connection for ND
Connects children and families with free and low-cost prescription drugs. For more information or to sign up for the program, please call 1-888-575-6611.
Red River Valley Dental Access Project
Urgent Care Walk-In Dental Clinic to provide immediate relief of dental pain to low-income patients.
Shriners Hospitals for Children®
Hospitals dedicated to improving the lives of children by providing pediatric specialty care, innovative research, and outstanding teaching programs for medical professionals. Children up to age 18 with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients' ability to pay. Please contact Lynn Monge at 701-235-7521 for more information.
YMCA Teen Enrichment Program
An innovative after school mentorship club dedicated to assisting young teens and young adults with developmental disabilities. For more information or to register for the program, please contact Lodee Arnold at 701-255-6122.
REGIONAL RESOURCES
2-1-1
A free, operator-serviced 24/7 statewide information, referral, and crisis management service that connects people with community services.
Community Services Locator
An online directory for finding services for children and families in the communities in which they live.
Federation of Families for Children's Mental Health
A family-run organization dedicated exclusively to helping children with mental health needs and their families achieve a better quality of life.
701-235-9923
Deborah Jendro
FirstLink
Links people and resources, 24/7 in Cass County, ND, Clay County, MN, and the surrounding area.
24 Hour Hotline: 701-235-7335 (235-SEEK)
Suicide Line: 701-232-4357 (232-HELP)
Mental Health America of North Dakota
Dedicated to helping all Americans live mentally healthier lives.
701-255-3692
1-800-472-2911
Susan Helgeland
Minnesota Association for Children's Mental Health (MACMH)
A statewide education and advocacy organization recognized by families and professionals as the state's primary resource for children's mental health.
651-644-7333
800-528-4511
Minnesota Department of Health
Information, referral and statistics for families of children with special health needs.
651-201-5000
888-345-0823 - For Minnesota callers outside the metro area
TTY: 651-201-5797
Minnesota Department of Human Services
Helps people meet their basic needs by providing or administering health care coverage, economic assistance, and a variety of services for children, people with disabilities, and older Minnesotans.
651-431-2000
TTY/TDD: 1-800-627-3529
National Alliance on Mental Illness
Easy-to-understand information about mental illnesses, mental health care, diagnosis, treatment and recovery.
National Alliance on Mental Illness - MN
651-645-2948
888-NAMI-HELPS
E-mail
National Alliance on Mental Illness - ND
701-852-8202
E-mail
Protection and Advocacy Project
Advocates for the legal rights of North Dakotans with disabilities.
800-472-2670
TDD: 800-366-6888
E-mail
Region V Parenting Resource Center
Resources for parents, teachers, and community on a variety of subjects.
701-241-5700
Angela Berge
MENTAL HEALTH RELATED WEBSITES
ADD/ADHD
Everything you need to know about ADD/ADHD.
Alateen
A program to help young people recover from the effects of problem drinking of a family member or friend.
American Academy of Child and Adolescent Psychiatry
The leading medical association dedicated to treating and improving the quality of life for children, adolescents, and families affected by mental, behavioral, or developmental disorders.
Early Childhood A - Z
Information about the development of infants and toddlers.
Psychology Topics
Useful and current information about emotional problems. Topics include ADHD, children and the media, anxiety, depression, children and school, bullying and violence.
Tourette Syndrome
Resources and referrals to help people and their families cope with the problems that occur with TS.
School Bullying/Safety
A checklist of characteristics of youth who have caused school-associated violent deaths, developed by the National School Safety Center (1998).
Your Child: Development and Behavior Resources
A clearinghouse for comprehensive information on children's development and behavior.
STRESS REACTIONS AND COPING TOOLS FOR DISASTER
Disaster affects people in a variety of ways. All of these responses are normal reactions to an abnormal situation, which can persist for weeks after the disaster.
Red River Resilience - "Bounce Back and Adapt"
Resilience is the ability to bounce back from crisis or adversity, and to adapt well to changes in your life. Everyone has the capacity for resilience, and you can learn to develop your resilience skills at any age. Resilient ways of thinking and behaving, which result in successful coping and adaptation to challenging situations, are summarised by the acronym FACTS:
Foster Hope
Act with Purpose
Connect with Others
Take Care of Yourself
Search for Meaning
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